Last post.........Down Syndrome Services to access

I have been quiet slack lately with my blog posts and this will be my last one. This post I hope will be very beneficial to some people in regards to services available to access.

Ablecare www.ablecare.com.au
Ablecare provides a functional holistic programme that aims to improve ability and the effects of a range of health problems and disabilities.

Access For All www.accessforall.org.au Access For All is a community group to ensure equitable and dignified access to all premises and facilities to all members of the community.

Access Recreation Inc www.accessrec.org.au
Access Recreation hosts recreational avenues for people with disabilities 5yrs and above.

ACROD Queensland www.acrod.org.au
ACROD is the national industry association for disability service providers.

Allergy, Sensitivity & Environmental Health Association (Qld) www.asehaqld.org.au
ASEHA gives support to people with allergy, food intolerance, yeast sensitivity, multiple chemical sensitivity (MCS), attention deficit hyperactivity disorder (ADHD) and chronic fatigue syndrome (CFS).

Amparo Advocacy http://www.amparo.org.au/
We speak, act and write to protect, defend and promote, the basic needs of, and fairness for, people from non-English speaking backgrounds with a disability.

Australian Communication Exchange http://www.aceinfo.net.au/
Australian Communication Exchange (ACE) is dedicated to empowering those who are Deaf or have a hearing, speech or communication impairment, to obtain access to the telephone and other telecommunication networks.

Autism Queensland www.autismaus.com.au
Autism Queensland (AQ) provides educational, therapy, support and training services to people with ASD, their families and people working with them.

Carers Queensland http://carersqld.asn.au

Carers Queensland represents the diverse needs and interests of carers in Queensland.

CODA http://www.codasouth.org/index.htm
CODA is an organisation that was established to meet the needs of families caring for an adult with a disability in their own homes.

Citizen Advocacy www.citizenadvocacy.com
Citizen Advocacy aims to recognize, promote and protect the rights and interests of people with intellectual disabilities.

Disability Services Australia http://www.dsa.org.au/Home.aspx?element=1&category=1
Disability Services Australia is a leader in the disability field providing employment and community support services to more than 1,000 people with a disability. Down Syndrome Association Queensland - http://www.dsaq.org.au/ Down Syndrome Queensland provides a range of services benefitting people with Down Syndrome

Employers Making a Difference http://www.and.org.au/
Employers Making a Difference operates as a strategic business partner with companies, organisations and governments employing people with a disability.

Endeavour http://www.endeavour.com.au/
Endeavour provides services and support for people with disabilities and their families.

HAND www.hand.org.au
HAND supports people with intellectual disability by enhancing leisure and lifestyle opportunities.

Inclusion and Professional Support Program http://www.deewr.gov.au/EarlyChildhood/programs/ChildCareforServices/SupportFamilyCCS/Pages/InclusionSupportProgram.aspx 

The Inclusion and Professional Support Program provided by the Department of Education, Employment and Workplace Relations aims to support childcare centres to include children with disabilities. 

Life Stream Foundation www.qrapid.org
Life Stream is the leading provider of sport and recreation programs for people with an intellectual disability in Queensland.

Mental Health Association of Queensland www.mentalhealth.org.au

The Mental Health Association envisages communities in which all people are provided with opportunities to optimise their mental health and participate as valued members of society.

Open Minds www.openminds.org.au
Open Minds aims to provide a service to persons with a disability that enhances their integration into the community.

Parent to Parent Association of Queensland www.parent2parentqld.org.au
Parent to Parent provides support by offering to the family a team of caring, mature, and skilled parents committed to helping other parents through their times of need.

People With Disability http://www.pwd.org.au/index.html

People with Disability Australia Incorporated is a national peak disability rights and advocacy organisation.

Queensland Advocacy Inc www.qai.org.au Queensland Advocacy Incorporated (QAI) provides advocacy and legal advocacy for people with disability in Queensland.

Queensland Disability Information and Awareness Line (DIAL) www.disability.qld.gov.au/dial.cfm
The Queensland Disability Information and Awareness Line (DIAL) is a free, state wide information and resource service.

Queensland Parents for People with a Disability Inc. http://www.qppd.org/ (QPPD) is a state-wide organisation involved in systems and family advocacy.

Queenslanders with Disabilities Network Inc (QDN) www.qdn.org.au QDN is a state wide network of people with disability, to build a voice of Queenslanders with disability to represent our views on issues that affect us.

Riding for the Disabled Association www.rda.org.au
Riding for the Disabled Association provides riding instruction and other activities associated with riding and harness driving for people with disabilities.

TakingItGlobal http://www.tigweb.org/about

TakingItGlobal connects youth around the world to find inspiration, information and get involved in improving their local and global communities.

The National Ethnic Disability Alliance http://www.neda.org.au/index.html

NEDA is the national consumer-based peak body for people from a non-English speaking background (NESB) with disability, their families and carers.

Vision Australia http://www.visionaustralia.org.au

Vision Australia works with people to enable them to experience life to its fullest.

Women With Disabilities Australia http://www.wwda.org.au

The peak organisation for women with all types of disabilities in Australia.

Dayna.

Kids in Care/Myths and Misconceptions

Okay so I must admit I have been quiet neglectful of my poor blog due to being busy and sick so I will be combining two subjects into one this week. 

Kids in Care
As I am currently doing my placement within Child Safety I thought it would be good to inform everyone what happens with children not only with Down Syndrome but all kids with disabilities. Within Child Safety is a database that has both children and carers, children with disabilities are classified as "high needs" or "extreme high needs". These children are then placed with foster carers who classify that they want children with high needs. In some cases these children are also connected with Disability Queensland but in all cases they are given the necessary care.

Myths and Misconceptions 
Myth: Most children with Down Syndrome are born to older parents
False: Once over 40 yrs of age the possibility of having a Downs baby does increase, however a 17yr old is just as likely to have a Downs baby as a woman 20-30yrs older

Myth: Children with Down Syndrome must be placed in separate special education programs
False: While most children with Downs attend a special school or a school with a special education unit it is also possible to mainstream Downs kids


Myth: People with Down Syndrome will live at home forever
False: A large percentage of adults with Down Syndrome live semi-independently in assisted living facilities and group homes

Dayna.

Signs, Symptoms and Different Types

It's been a couple of weeks since I last posted so I've decided to post two topics. These two being signs and symptoms and the different types of Down Syndrome. 

Signs and Symptoms

Symptoms of Down Syndrome are both physical, intellectual and medical. Typically people with Down Syndrome have slower mental and physical development. The picture below shows features that people with Downs most commonly have.

People with Downs also suffer from various medical conditions that decrease their quality and span of life. These conditions include:

• Congenital heart disease
• Hearing problems
• Intestinal problems
• Celiac disease
• Eye problems
• Thyroid dysfunctions
• Skeletal problems
• Dementia

Different Types of Down Syndrome

Type 1 - Trisomy 21 (previously explained in my blog) this accounts for 90% - 95% of all cases

Type 2 - Translocation occurs when a part of chromosome 21 detaches and attaches itself to another chromosome, having the same affect as having 47 chromosomes. This accounts for 3% - 5% of cases.

Type 3 - Mosaicism occurs during fertilisation when a) the person received 46 chromosomes at fertilization but somewhere during early cell division the chromosome 21 cell pairs failed to split creating a cell with 47 chromosomes b) the person received 47 chromosomes at fertilization but later during cell division the extra chromosome is lost. These occur in 2% to 5% of cases. A person with Mosaic Down syndrome may exhibit all, some, or none of the characteristics of Down syndrome depending on the percent of cells carrying the extra chromosome and where these cells are located.

Dayna.

Websites cited - http://www.nichd.nih.gov/health/topics/down_syndrome.cfm

http://www.downsyn.com/whatisds.php

The history of Down Syndrome

Unfortunately the history of Down Syndrome is not very pretty or respectable. In the 1800’s little was known about Down Syndrome and a lot of people were admitted to hospitals where they lived out their then, short lives. It wasn’t until 1866 when John Langdon Down discovered the link of Down Syndrome to intellectual impairment. He began to use the term mongoloid, comparing the facial features of Down Syndrome with people from Mongolia. In 1959 a French physician Dr Jerome Lejeune changed the world forever when he discovered that Down Syndrome was a chromosomal abnormality. Further research revealed they indeed had 47 chromosomes instead of 46. It was later discovered that chromosome 21 was responsible for this defect and so became Trisomy 21.

Information credited to: http://downsyndrome.com/history-of-down-syndrome/

Dayna.

What is Down syndrome

For those who don't know much or anything about Down syndrome it is a chromosonal anomaly which is caused by the failure of chromosome 21 to separate therefore causing the child to develop with three chromosome 21's instead of two. Approximately 1 in 800 babies is born with Down syndrome and while the chances of having a downs baby increase for women over 40, around 70% are born to mothers under 35. This extra chromosome can generate differences in physical features, intellectual impairment and different degrees of medical conditions such as congenital heart defects. 

Dayna.

Information credited to: http://www.dsaq.org.au/information-about-down-syndrome.htm

Must Read!

I recommend to everybody before they read my blog or any information about Down Syndrome to read the book I am about to tell you about. I read this book for an english assignment in high school which involved reading a biography. At this point in time I really only had very basic knowledge about this condition and I guess I was a bit biased and I thought the book would be really boring. After I finished this book my life changed, my eyes were opened up to a whole new perspective and I would be lying if I said it hasn't influenced me and made me who I am today.


This book is called "A Mother like Alex" it depicts the story of Alex Bell who at 28 became one of the first people to adopt as a single parent. The first child she adopted was Matthew, a child with Down Syndrome. She then went on to adopt 8 more children, Simon, Adrian, Nathan, Andrew, Chloe, Tom, Emily and Callum all presenting with Down Syndrome and other disabilities. Together they somehow make a family. This woman is inspiring and this is reflected in her book which I highly recommend.

Family Shot

Book Cover

Dayna.

Welcome

I have created this page as part of a TAFE assignment, the title pretty much explains it however my focus is going to be on Down Syndrome. Each week I will be posting different information about Down Syndrome and some of the issues they and their family face. As this is for an assignment any rude or negative comments will be deleted and I ask everyone to please respect the purpose of the page and other people's opinions. Many thanks and I hope you all enjoy reading and being educated about Down Syndrome.


Dayna.